Today is the beginning of my last weekend before Mom returns from California. I have mixed feelings about that. I have missed her and her antics but I have also enjoyed not being tied down and stuck to a schedule. I felt like I was truly retired for the last couple of months. I didn't have to keep an eye on the clock to make sure that I was home by 2:30. I could roll over and go back to sleep instead of going upstairs to set out clothing and bathroom products. I could wait and have breakfast at noon if I wanted instead of 8:30. I could leave the tv off and if it was on there were never any game shows playing!! I had no routine.
Ok.....Maybe I did miss Steve Harvey a tiny bit!!
Routine is very important to people suffering with Alzheimer/Dementia. Perhaps because they recognize that they are powerless over so much that having a routine gives them a little control. Perhaps because "not knowing" is scary to them so having a routine helps them to "know" what is going on. I don't know, it is a strange and scary disease. I only know that if routine is what Mom needs then that is what I will give her. But it was very nice being able to live with a little spontaneity for the last couple of months.
Bless you Wendy! You said it perfectly. I haven't had a day without mom yet, but I crave all the things you mentioned! And I know the power of their schedule all too well. The few minutes you may enjoy that throws off your schedule has to be paid back in hours, maybe days of anxiety. Enjoy your weekend. Here's to breakfast at noon and dinner at midnight!
ReplyDeleteThanks Lisa, It is so nice having you and Paula to share this with. Unless you are living it you cannot completely understand.
DeleteI am right there craving this same thing with you Lisa. And Wendy I am happy to have found you as well to help me walk this hard path.
ReplyDeleteA hidden blessing to this disease. New friends found.
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